September ... generally referred to as "Go for Gold" month which is geared towards Childhood Cancer Awareness. Unfortunately, there are just so many conditions, diseases, etc anymore that months now have to share the "spotlight" (and that's definitely not the right word to use, so please know that there's no malicious intent behind my verbiage.) I've had several friends who've been affected by childhood cancer, too, so before I talk about craniosynostosis, please also keep all those affected by childhood cancer in your thoughts as well.
So why am I talking to you about craniosynostosis? I didn't even know what it was up until my grandson was born. Yes, that's right. I became a "Glamma" last month! As they were getting ready to release him after his quick bout with jaundice (very common of course), they noticed that his head leaned a certain way and explained he had "fused sutures". Essentially it meant that his skull formed too quickly, which could also create learning problems as his brain continues to grow. It was a scary term since it was simply unknown to us. Anytime you're told surgery is needed it raises concern as well. Fortunately, my grandson has a case that can be treated with a less invasive surgery, which will happen later this month. After that, he'll wear a custom helmet and undergo "helmet therapy" for another 6-9 months. I've often seen babies wearing helmets and didn't know why. Now I do.
The hard part about all of this is that it's toughest on the parents/family. Fortunately, he won't have any recollection of this. And because it was caught early, this should hopefully only be considered a "road bump". His neurosurgeon is the one who perfected the surgery at Johns Hopkins so I have the utmost confidence all will go well. Of course, it never hurts to ask for those to keep him in mind either.
I encourage everyone to take a moment if you can when you are done reading my blog post to read an article I found during my own research. The article mentions a case that is more involved with a bigger incision, longer surgery, etc.
The hard part about all of this is that it's toughest on the parents/family. Fortunately, he won't have any recollection of this. And because it was caught early, this should hopefully only be considered a "road bump". His neurosurgeon is the one who perfected the surgery at Johns Hopkins so I have the utmost confidence all will go well. Of course, it never hurts to ask for those to keep him in mind either.
I encourage everyone to take a moment if you can when you are done reading my blog post to read an article I found during my own research. The article mentions a case that is more involved with a bigger incision, longer surgery, etc.
http://m.huffpost.com/us/







